If you will, show your support by wearing green today. Our daughter has a rare syndrome called "Kabuki Syndrome", it hits 1 out of 39,000 kids in the world and is a genetic syndrome and causes a ton of medical, learning and functioning issues. Our little girl was born at 1lb 12 ounces and measured at 12 inches long.
Today she is 7 and doing better and is learning to talk and learning to eat by mouth. She had a cleft pallette at birth and has low muscle tone so it's been difficult to learn how to talk let alone eat and swallow.
Looking at her you wouldn't know, she is a bubbly, happy young lady and loves life. She is smart and loves everyone. We call her our little "Rock Star" because everyone that meets her, falls in love with her!!!
If you show support today, Thank YOU and God Bless!!!
Kerry, Lisa and Lilly